Search Results: the-conversation-a-revolutionary-plan-for-end-of-life-care

The Conversation

A Revolutionary Plan for End-of-Life Care

Author: Angelo E. Volandes,Angelo Volandes

Publisher: Bloomsbury Publishing USA

ISBN: 1620408546

Category: Health & Fitness

Page: 240

View: 2608

Harvard Medical School physician Angelo Volandes offers a solution to traumatic end-of-life care: talking, medicine's oldest and least technological tool in the proverbial black bag.

The Conversation

A Revolutionary Plan for End-of-Life Care

Author: Angelo E. Volandes

Publisher: Bloomsbury Publishing USA

ISBN: 1620408562

Category: Social Science

Page: 240

View: 8403

There is an unspoken dark side of American medicine--keeping patients alive at any price. Two thirds of Americans die in healthcare institutions, tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones. Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care. It might be the most important conversation you ever have.

The Conversation

A Revolutionary Plan for End-Of-Life Care

Author: Angelo E. Volandes

Publisher: Thorndike Press Large Print

ISBN: 9781410494788

Category: Medical

Page: 313

View: 5523

In this "enlightening" (Jane Brody, "New York Times") book, Harvard Medical School physician Volandes offers a solution to traumatic end-of-life care: talking, medicine's oldest tool.

The Conversation

A Revolutionary Plan for End-of-Life Care

Author: Angelo Volandes, M.D., M.D.

Publisher: Bloomsbury USA

ISBN: 9781620408551

Category: Social Science

Page: 240

View: 3588

There is an unspoken dark side of American medicine--keeping patients alive at any price. Two thirds of Americans die in healthcare institutions, tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones. Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care. It might be the most important conversation you ever have.

Advance Care Planning in End of Life Care

Author: Keri Thomas,Ben Lobo,Karen Detering

Publisher: Oxford University Press

ISBN: 0192542362

Category: Medical

Page: 336

View: 1117

Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.

Modern Death

How Medicine Changed the End of Life

Author: Haider Warraich

Publisher: Gerald Duckworth & Co

ISBN: 0715652400

Category: Medical

Page: 336

View: 8984

Nothing is more certain in life than death. Yet recent advances in medicine and technology have dramatically increased our life expectancy, and everything about when, where, how and why we die has changed. The result is that dying is today a more prolonged and harrowing experience than ever before. In Modern Death, the physician and clinical researcher Haider Warraich draws on his expert personal experience as well as on history, culture, theology and legal theory, to tackle important ethical questions that go right to the heart of what it is to be human. He reveals what dying really means in today’s medical industrial complex, discusses the ethics of patient proxies, living wills and the right to die, and argues in favour of giving terminally ill patients the right to physician-assisted death. Written by an insightful, new voice in the conversation about death and dying, Modern Death is a heartfelt and inspiring book offering an unabashedly honest perspective, exploring how we can and must do better by the ones we love.

Introducing Palliative Care

Author: Robert G. Twycross

Publisher: Radcliffe Publishing

ISBN: 9781857759150

Category: Medical

Page: 190

View: 4659

Developed from the author's training programme that is used in many countries around the world, this manual is designed for professionals working with the terminally ill. The book covers the physical, psychological and spiritual aspects of care.

Talking About Death Won’t Kill You

The Essential Guide to End-of-Life Conversations

Author: Dr. Kathy Kortes-Miller

Publisher: ECW Press

ISBN: 1773051768

Category: Self-Help

Page: 280

View: 3567

This practical handbook will equip readers with the tools to have meaningful conversations about death and dying Death is a part of life. We used to understand this, and in the past, loved ones generally died at home with family around them. But in just a few generations, death has become a medical event, and we have lost the ability to make this last part of life more personal and meaningful. Today people want to regain control over health-care decisions for themselves and their loved ones. Talking About Death Won’t Kill You is the essential handbook to help Canadians navigate personal and medical decisions for the best quality of life for the end of our lives. Noted palliative-care educator and researcher Kathy Kortes-Miller shows readers how to identify and reframe limiting beliefs about dying with humor and compassion. With robust resource lists, Kortes-Miller addresses advance care plans for ourselves and our loved ones how to have conversations about end-of-life wishes with loved ones how to talk to children about death how to build a compassionate workplace practical strategies to support our colleagues how to talk to health-care practitioners how to manage challenging family dynamics as someone is dying what is involved in medical assistance in dying (MAID) Far from morbid, these conversations are full of meaning and life — and the relief that comes from knowing what your loved ones want, and what you want for yourself.

Extreme Measures

Finding a Better Path to the End of Life

Author: Jessica Nutik Zitter

Publisher: Penguin

ISBN: 1101982551

Category: MEDICAL

Page: 338

View: 6461

In medical school, no one teaches you how to let a patient die. Currently, the old and the ill are intubated, catheterised, and even shelved away in care facilities to live out their final days alone, confused, and sometimes in pain. In her work, Zitter has learned to understand that what patients fear more than death itself is the prospect of dying alone. Filled with the kinds of rich patient stories that make the most compelling medical narratives, Extreme Measures thoughtfully and compassionately examines an experience that defines being human.

Life after the Diagnosis

Expert Advice on Living Well with Serious Illness for Patients and Caregivers

Author: Steven Pantilat,Steven Pantilat, M.D.

Publisher: Da Capo Press

ISBN: 0738219541

Category: Family & Relationships

Page: 999

View: 5426

In Life After the Diagnosis, Dr. Steven Z. Pantilat, a renowned international expert in palliative care, shares innovative approaches for dealing with serious illness, outlines the steps that patients should take, and demystifies the medical system. He makes sense of what doctors say, what they actually mean, and how to get the best information to help make the best medical decisions. Dr. Pantilat covers everything from the first steps after the diagnosis and finding the right caregiving and support, to planning your future so your loved ones don't have to. He offers advice on how to tackle the most difficult treatment decisions and discussions and shows readers how to choose treatments that help more than they hurt, stay consistent with their values and personal goals, and live as well as possible for as long as possible.

The Best Care Possible

A Physician's Quest to Transform Care Through the End of Life

Author: Ira Byock

Publisher: Penguin

ISBN: 1583335129

Category: Medical

Page: 320

View: 2231

Dr. Byock, one of the foremost palliative care physicians in the country, argues that the way we die represents a national crisis. Though the vast majority of Americans would prefer to die peacefully, at home, many will spend their last days in a disease treatment system ruled by high-tech procedures and a philosophy to 'fight disease and illness at all costs.' Dr. Byock, puts a human face on the issue by telling richly moving stories - at once heartwrenching and uplifting - of people coping with the most difficult moments in their lives. As the pace of health care reform accelerates, he shows what truly excellent care can look like, and how wise and skilful doctors, nurses, and clinical teams can profoundly shape families' experiences of illness, caregiving, and loss. Told through page-turning life-or-death medical drama, The Best Care Possibleis a compelling and passionate meditation on medicine and ethics. It has the power to lead a new national conversation. 'Dr. Byock's mission is to help everyone . . . find meaning, dignity, and peace in these final months of life.' Prevention magazine'In this strikingly important book, Byock presents an agenda for end-of-life care that should serve as an ideal template on which to build out best hopes for the final days of those we love and of ourselves - and a corrective for our society.' Sherwin B. Nuland, MD, Yale Interdisciplinary Center for Bioethics; author of How We Die

A Better Way of Dying

How to Make the Best Choices at the End of Life

Author: Jeanne Fitzpatrick,Eileen M. Fitzpatrick

Publisher: Penguin

ISBN: 1101195606

Category: Self-Help

Page: 240

View: 893

The fail-safe plan for ensuring one's final wishes are respected Advanced directives and living wills have improved our ability to dictate end-of-life care, but even these cannot guaran­tee that we will be allowed the dignity of a natural death. Designed by two sisters-one a doctor, one a lawyer-and drawing on their decades of experience, the five-step Compassion Protocol outlined in A Better Way of Dying offers a simple and effective framework for leaving caretakers concrete, unambiguous, and legally binding instructions about your wishes for your last days. Meant for people in every walk of life-from the elderly, to those in the early stages of mentally degenerative diseases like Alzheimer's, to healthy young people planning for an unpredictable future-this book creates space for a discussion we all must have if we wish to ensure comfort and control at the end of our lives..

Ethics in Palliative Care

A Complete Guide

Author: Robert C. Macauley MD

Publisher: Oxford University Press

ISBN: 0190652330

Category: Medical

Page: 344

View: 2999

No specialty faces more diverse and challenging ethical dilemmas than palliative medicine. What is the best way to plan ahead for the end of life? How should physicians respond when patients refuse treatments likely to be beneficial, or demand treatments not likely to be? Who makes medical decisions for patients who are too ill to decide for themselves? Do patients have the "right to die" (and, if so, what exactly does that mean)? In this volume noted palliative care physician and bioethicist Robert C. Macauley addresses a broad range of issues from historical, legal, clinical, and ethical perspectives. Clinically nuanced and philosophically rigorous, Ethics in Palliative Care analyzes hot-button subjects like physician assisted dying and euthanasia, as well as often overlooked topics such as pediatric palliative care, organ donation, palliative care research, and moral distress. Drawing on real cases yet written in non-technical language, this complete guide will appeal to both medical professionals and lay readers.

What Dying People Want

Lessons for Living from People Who Are Dying

Author: Dr. David Kuhl

Publisher: Anchor Canada

ISBN: 0307374971

Category: Self-Help

Page: 352

View: 3321

An internationally renowned palliative care physician offers guidance on living with a terminal illness. Based on research funded by the Soros Foundation and extensive interviews with dying people. A profound and practical book about living with a terminal illness over a long period of time. It offers guidance, solace, and helpful strategies for people who are terminally ill, their families and caregivers. Facing death results in more fear and anxiety than any other human experience. Western medicine has accomplished a great deal in addressing physical pain and controlling symptoms for people with a terminal illness, but much slower progress has been made in understanding and alleviating psychological and spiritual distress. In What Dying People Want, Dr. David Kuhl begins to bridge that gap. He does so by addressing end-of-life realities — physical, psychological and spiritual — through his own experiences as a doctor and through the words and experiences of people who know that they are dying. He presents ways of addressing the pain, of finding new life in the process of dying and of understanding the inner reality of living with a terminal illness. He acknowledges the despair and recognizes the desire for hope and meaning. Dr. Kuhl also makes the provocative case that insensitive communication by doctors creates more suffering for patients than either the illness or the knowledge of impending death, and offers both the dying and their caregivers guidance on preventing painful interactions. He provides ways of speaking about difficult topics with physicians, family members, friends and those who have a terminal illness. “This book started with a research question: What is the daily experience of living with a terminal illness? How does that experience affect your sense of self, your relationship with others, and your understanding of the spiritual? Many of those I interviewed asked me to share what they had given me with others who would follow — those with a terminal illness as well as their friends and family members who would care for them and about them. They asked specifically that I write a book for a general audience, and not only for my colleagues in the medical profession. This is the book that grew out of that research.” — Dr. David Kuhl From the Hardcover edition.

Awake at the Bedside

Contemplative Teachings on Palliative and End-of-Life Care

Author: Koshin Paley Ellison,Matt Weingast

Publisher: Simon and Schuster

ISBN: 1614291195

Category: Family & Relationships

Page: 368

View: 3847

This book isn’t about dying. It’s about life and what life has to teach us. It’s about caring and what giving care really means. In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort—and change the way we think about death. Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind. Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman, Bhikkhu Bodhi, Joshua Bright, Ira Byock, Robert Chodo Campbell, Rafael Campo, Ajahn Chah, Ram Dass, Kirsten DeLeo, Issan Dorsey, Mark Doty, Norman Fischer, Nick Flynn, Gil Fronsdal, Joseph Goldstein, Shodo Harada Roshi, Tony Hoagland, Marie Howe, Fernando Kawai, Michael Kearney, Elisabeth Kubler-Ross, Stanley Kunitz, Stephen and Ondrea Levine, Judy Lief, Betsy MacGregor, Diane E. Meier, W. S. Merwin, Naomi Shihab Nye, Frank Ostaseski, Rachel Naomi Remen, Larry Rosenberg, Rumi, Cicely Saunders, Senryu, Jason Shinder, Derek Walcott, Radhule B. Weininger.

Start the Conversation

The Book About Death You Were Hoping to Find

Author: Ganga Stone

Publisher: Grand Central Publishing

ISBN: 9780446672801

Category: Family & Relationships

Page: 208

View: 6733

Combining Eastern spiritualism with Western science, the founder of the national charity God's Love We Deliver creates an inspiring, practical, and hopeful approach to facing death. Uplifting without being sentimental, Stone explores such important issues as fear and grief, near-death experiences, survival, and preparation for death.

Knocking on Heaven's Door

The Path to a Better Way of Death

Author: Katy Butler

Publisher: Simon and Schuster

ISBN: 1451641990

Category: Biography & Autobiography

Page: 336

View: 7626

In this visionary memoir, based on a groundbreaking New York Times Magazine story, award-winning journalist Katy Butler ponders her parents’ desires for “Good Deaths” and the forces within medicine that stood in the way. Katy Butler was living thousands of miles from her vigorous and self-reliant parents when the call came: a crippling stroke had left her proud seventy-nine-year-old father unable to fasten a belt or complete a sentence. Tragedy at first drew the family closer: her mother devoted herself to caregiving, and Butler joined the twenty-four million Americans helping shepherd parents through their final declines. Then doctors outfitted her father with a pacemaker, keeping his heart going but doing nothing to prevent his six-year slide into dementia, near-blindness, and misery. When he told his exhausted wife, “I’m living too long,” mother and daughter were forced to confront a series of wrenching moral questions. When does death stop being a curse and become a blessing? Where is the line between saving a life and prolonging a dying? When do you say to a doctor, “Let my loved one go?” When doctors refused to disable the pacemaker, condemning her father to a prolonged and agonizing death, Butler set out to understand why. Her quest had barely begun when her mother took another path. Faced with her own grave illness, she rebelled against her doctors, refused open-heart surgery, and met death head-on. With a reporter’s skill and a daughter’s love, Butler explores what happens when our terror of death collides with the technological imperatives of medicine. Her provocative thesis is that modern medicine, in its pursuit of maximum longevity, often creates more suffering than it prevents. This revolutionary blend of memoir and investigative reporting lays bare the tangled web of technology, medicine, and commerce that dying has become. And it chronicles the rise of Slow Medicine, a new movement trying to reclaim the “Good Deaths” our ancestors prized. Knocking on Heaven’s Door is a map through the labyrinth of a broken medical system. It will inspire the difficult conversations we need to have with loved ones as it illuminates the path to a better way of death.

Grief Unveiled

A Widow’s Guide to Navigating Your Journey in Life After Loss

Author: Sarah Nannen

Publisher: Morgan James Publishing

ISBN: 1683507517

Category: Family & Relationships

Page: N.A

View: 4639

Widowhood leaves you forever changed but does not have to mean forever suffering. Grief Unveiled is a love letter from a widow sister that will change what you believe is possible in life after loss. This book acts as a guide to those supporting the bereaved just as it illuminates a path for anyone traveling the road of widowhood. Based on her personal experiences in grief and those of her clients, Sarah Nannen offers a deeply intimate look at widowhood through the lens of hope and possibility while honoring the depth of grief's pain. Grief Unveiled shows you how to stop just surviving and thrive in life after loss.

Final Journeys

A Practical Guide for Bringing Care and Comfort at the End of Life

Author: Maggie Callanan

Publisher: Bantam

ISBN: 055390423X

Category: Self-Help

Page: 352

View: 3058

For more than two decades, hospice nurse Maggie Callanan has tended to the terminally ill and been a cornerstone of support for their loved ones. Now the coauthor of the classic bestseller Final Gifts passes along the lessons she has learned from the experts—her patients. Here is the guide we all need to understanding the special needs of the dying and those who care for them. In her work with thousands of families, Maggie Callanan has witnessed the tears, the love—and the confusion and conflict—this final passage can evoke. Now, with honesty, compassion, and even humor, she empowers patients and their families to write the last chapter of their lives with less fear, less pain, and more control—so that all involved can focus their energies on creating the best possible ending. From supporting a husband or wife faced with the loss of a spouse, to helping a dying mother prepare her children to carry on without her, Callanan’s poignant stories illustrate new ways to meet the physical, emotional, and spiritual challenges of this difficult and precious time. She brings welcome clarity to medical and ethical concerns, explaining what to expect at every stage. Each brief chapter also conveys a home truth about making crucial treatment decisions, supporting the patient’s dignity and individuality, and lightening the burden on caregivers. Final Journeys is designed to be your companion, resource, and advocate. From diagnosis through the final hours, it will help you keep the lines of communication open, get the help you need, and create the peaceful end we all hope for. From the Hardcover edition.

The End of Life Advisor

Personal, Legal, and Medical Considerations for a Peaceful, Dignified Death

Author: Susan R. Dolan Rn Jd,Audrey R. Vizzard Rn Edd

Publisher: N.A

ISBN: 9781478716501

Category: Education

Page: 163

View: 7039

A source of reliable information and guidance for lifes last and most difficult situations?ǪNatural story-tellers, the authors deftly tell lively, colorful stories of people caught in extraordinary circumstances to convey lessons that we all would be wise to learn. I will recommend this book to patients and families. -Ira Byock, MD, Director of Palliative Care, Dartmouth-Hitchcock Medical Center, New Hampshire, author of Dying Well and The Four Things that Matter Most Packed with wisdom, compassion, humor, and most of all hope?Ǫan invaluable handbook that touches on every aspect of planning and preparing for excellent end-of-life care. -Barbara Dossey, PhD, RN, AHN-BC, FAAN, International Co-Director, Nightingale Initiative for Global Health, author of Holistic Nursing Once I started reading this book I couldnt stop. It seemed like I was reading a diary of my last 25 years as a hospice physician. What a wonderful, extraordinary and uplifting gift. For a long-time ?Çÿhospice road warrior, the book brought not only many smiles and frank laughter, but many tearful moments for me, too?Ǫall reminding me that this chosen work is, too, a gift. -Perry Fine, MD, Professor of Anesthesiology, Pain Research Center, School of Medicine, University of Utah, author of The Hospice Companion Weaving stories from their decades of experience with patients, this mother-daughter team has crafted a true gem. This approachable book illuminates the need for conversations about end-of-life choices and demonstrates the grace of hospice. It is a wonderful tool to enable people of all ages to follow the sage advice, From the start, consider the finish. -Nathan A. Kottkamp, JD, Chairman, National Healthcare Decisions day, Healthcare Attorney, McGuire woods LLP, Richmond, Virginia

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