An internationally renowned palliative care physician offers guidance on living with a terminal illness. Based on research funded by the Soros Foundation and extensive interviews with dying people. A profound and practical book about living with a terminal illness over a long period of time. It offers guidance, solace, and helpful strategies for people who are terminally ill, their families and caregivers. Facing death results in more fear and anxiety than any other human experience. Western medicine has accomplished a great deal in addressing physical pain and controlling symptoms for people with a terminal illness, but much slower progress has been made in understanding and alleviating psychological and spiritual distress. In What Dying People Want, Dr. David Kuhl begins to bridge that gap. He does so by addressing end-of-life realities — physical, psychological and spiritual — through his own experiences as a doctor and through the words and experiences of people who know that they are dying. He presents ways of addressing the pain, of finding new life in the process of dying and of understanding the inner reality of living with a terminal illness. He acknowledges the despair and recognizes the desire for hope and meaning. Dr. Kuhl also makes the provocative case that insensitive communication by doctors creates more suffering for patients than either the illness or the knowledge of impending death, and offers both the dying and their caregivers guidance on preventing painful interactions. He provides ways of speaking about difficult topics with physicians, family members, friends and those who have a terminal illness. “This book started with a research question: What is the daily experience of living with a terminal illness? How does that experience affect your sense of self, your relationship with others, and your understanding of the spiritual? Many of those I interviewed asked me to share what they had given me with others who would follow — those with a terminal illness as well as their friends and family members who would care for them and about them. They asked specifically that I write a book for a general audience, and not only for my colleagues in the medical profession. This is the book that grew out of that research.” — Dr. David Kuhl From the Hardcover edition.
Over a period of almost 10 years, the work of the Project on Death in America (PDIA) played a formative role in the advancement of end of life care in the United States. The project concerned itself with adults and children, and with interests crossing boundaries between the clinical disciplines, the social sciences, arts and humanities. PDIA engaged with the problems of resources in poor communities and marginalized groups and settings, and it attempted to foster collaboration across a range of sectors and organizations. Authored by medical sociologist David Clark, whose research career has focused on mapping, archiving and analyzing the history and development of hospice, palliative care and related end of life issues, this book examines the broad, ambitious conception of PDIA - which sought to 'transform the culture of dying in America' - and assesses PDIA's contribution to the development of the palliative care field and to wider debates about end of life care within American society. Chapters consider key issues and topics tackled by PDIA grantees which include: explorations of the meanings of death in contemporary American culture; the varying experiences of care at the end of life (in different settings, among different social and ethnic groups); the innovations in service development and clinical practice that have occurred in the US in response to a growing awareness of and debate about end of life issues; the emerging evidence base for palliative and end of life care in the US; the maturation of a field of academic and clinical specialization; the policy and legal issues that have shaped development, including the ethical debate about assisted suicide and the Oregon experience; the opportunities and barriers that have been encountered; and the prospects for future development. A final chapter captures developments and milestones in the field since PDIA closed in 2003, and some of the challenges going forward.
First pioneered by Irene Burnside, Working with Older Adults: Group Process and Techniques is now in its Fourth Edition, with new editors and many new contributing authors. By combining interdisciplinary theory and practice, this book introduces students to group work theories, and explains how to modify general theory to meet the needs of older adults, including those who are contending with particular physical and cognitive disabilities. In easily accessible style, with numerous case studies in varying settings (hospitals, nursing homes, residential facilities, day centers, and home care), Working with Older Adults emphasizes group development, structure, process, and evaluating outcomes.
Practical and inspiring, this best-selling book helps students learn to cope with encounters with death, dying, and bereavement. The authors integrate classical and contemporary material, present task-based approaches for individual and family coping, and include four substantial chapters devoted to death-related issues faced by children, adolescents, adults, and the elderly. The text discusses a variety of cultural and religious perspectives that affect people’s understandings and practices associated with such encounters. The book also offers practical guidelines for constructive communication designed to encourage productive living in the face of death. Important Notice: Media content referenced within the product description or the product text may not be available in the ebook version.
In the summer of 1996, Ruth Ray, a gerontologist in her forties, befriended an eighty-two-year-old man suffering from Parkinson's. The two remained close until the end of his life, sharing stories and memories while building a deep relationship. Part memoir, part biography, Endnotes explores how people construct meaning through their interactions with others. With grace and wit, Ray situates her friend's past experiences and present relationships within the theories and literature of gerontology, providing a deeper understanding of autonomy at the end of life. She also delves into the complexities of sexuality and intimacy in old age, communication across disabilities and age groups, the disabling nature of nursing homes, and the trials of death and dying. Writing as both a woman and a gerontologist, Ray finds that the "quality of care" we provide for others requires not only an understanding of the relationships that have given a person's life meaning but also a willingness to accept and share deeply in the emotional process of physical and mental decline.
What the Dying Are Trying to Say About Where They're Going
Author: Patricia Pearson
Publisher: Simon and Schuster
The first book by a respected journalist on Nearing Death Awareness—similar to Near-Death Experience—this “fascinating” (Kirkus Reviews) exploration brings “humor, sympathy, and keen critical intelligence to a topic that is all too often off-limits” (Ptolemy Tompkins, collaborator with Eben Alexander on Proof of Heaven). People everywhere carry with them extraordinary, deeply comforting experiences that arrived at the moment when they most needed relief: when they lost a loved one. These experiences can include clear messages from beyond, profound and vividly beautiful visions, mysterious connections and spiritual awareness, foreknowledge of a loved one’s passing—all of which evade explanation by science and logic. Most people keep these transcendent experiences secret for fear they will be discounted by hyperrational scrutiny. Yet these very common occurrences have the power to console, comfort, and even transform our understanding of life and death. Prompted by her family’s surprising, profound experiences around the death of her father and her sister, reporter Patricia Pearson sets out on an open-minded inquiry, a rare journalistic investigation of Nearing Death Awareness, which Anne Rice praises as “substantive, eloquent, and worthwhile.” Opening Heaven’s Door offers deeply affecting stories of messages from the dying and the dead in a fascinating work of investigative journalism, pointing to new scientific explanations that give these luminous moments the importance felt by those who experience them. Pearson also delves into out-of-body and near-death experiences, examining stories and research to make sense of these related but distinct categories. Challenging current assumptions about what we know and what we are still unable to explain, Opening Heaven’s Door will forever alter your perceptions of the nature of life and death.
The Wiley Blackwell Handbook of Mindfulness brings together the latest multi-disciplinary research on mindfulness from a group of international scholars: Examines the origins and key theories of the two dominant Western approaches to mindfulness Compares, contrasts, and integrates insights from the social psychological and Eastern-derived perspectives Discusses the implications for mindfulness across a range of fields, including consciousness and cognition, education, creativity, leadership and organizational behavior, law, medical practice and therapy, well-being, and sports 2 Volumes
Concepts and Cases in Nursing Ethics is a case-based exploration of the core principles of health care ethics applied to nursing. The book is a collaboration between philosopher-ethicist Michael Yeo and nurse-ethicist and educators Anne Moorhouse, Pamela Khan, and Patricia Rodney. It thus combines philosophical and ethical analysis with extensive knowledge and experience in nursing and health care. The book is organized around six main concepts in health care ethics: beneficence, autonomy, truthfulness, confidentiality, justice, and integrity. A chapter is devoted to the elucidation of each of these concepts. In each chapter, historical background and conceptual analysis are supplemented by case studies that exemplify issues and show how the concept applies in health care and nursing practice. In this new edition, the conceptual analysis throughout has been updated and reworked in view of changes in the health care system. In addition, there is a new chapter specifically devoted to recent developments affecting nursing and other health professions. Previous case studies have been modified and new ones added to address current and emerging issues. Although the text focuses mainly on the social and political situation of nursing, the analysis has relevance also for medicine and the allied health professions, and indeed for anyone working in the health system.